How a Pediatric Nurse's Program Keeps Patients and Care Teams United Post-Discharge
In the world of pediatric cardiac care, innovation, and compassion go hand in hand. At UCSF Benioff Children's Hospital, Kathleen Cinelli, RN, introduced an innovative "Hearts at Home" program, working with infants and children suffering from congenital heart disease, many of whom require open-heart surgery and extended recovery periods.
Bridging the Gap Between Hospital and Home
The Hearts at Home Program is designed to address a critical need in pediatric cardiac care: providing comprehensive support to patients and their families as they transition from the hospital to their home environment. This innovative approach recognizes that the challenges faced by young heart patients don't end when they're discharged from the hospital. By forming strong bonds with patients and their families, the program aims to ensure continuity of care and improve overall outcomes.
The program provides holistic support through email newsletters and events that share joyful updates about the children's milestones, such as birthdays and holidays. The initiative has fostered a sense of community and continuity, allowing families to stay connected with the medical team. It also serves as an inspiration for healthcare providers, reinforcing their commitment to their demanding roles.
Empowering Families Through Education and Resources
A crucial aspect of the Hearts at Home Program is its focus on patient and family education. By providing in-depth information about the child's condition, treatment plan, and potential complications, the program empowers families to take an active role in their child's care. This ongoing support addresses the emotional, social, and practical needs of both patients and their families. This may include assistance with medication management, guidance on lifestyle adjustments, and resources for coping with the psychological impact of living with a heart condition.
This knowledge-sharing approach not only improves adherence to treatment plans but also helps reduce anxiety and uncertainty for families caring for a child with a complex cardiac condition.
Building a Support Network Beyond the Hospital
Another innovative aspect of “Hearts at Home” is its emphasis on creating a support network that extends beyond the hospital setting. Cinelli and her team work to connect families with community resources, support groups, and other families facing similar challenges. This network provides invaluable emotional support and practical advice, helping families navigate the complexities of caring for a child with a heart condition in their day-to-day lives.
Cinelli's dedication and innovative approach have earned her the 2024 Distinguished Nurse Award from UCSF, highlighting her exemplary service and compassionate care in the pediatric cardiac ICU24.
While the program is still in its early stages, “Hearts at Home” represents a significant step forward in pediatric cardiac care. As the program continues to develop and demonstrate its effectiveness, it has the potential to serve as a model for other healthcare institutions across the country, and may pave the way for similar programs in other specialties, setting a new standard for patient care that extends far beyond the hospital doors.
